Child for life
Ashley is a 9-year-old girl who has static encephalopathy, a severe brain impairment. She cannot walk or talk. She cannot keep her head up, roll over, or sit up by herself. She is fed with a tube. Her parents call her “Pillow Angel,” since she stays where they place her, usually on a pillow.Her parents say they feared their angel would become too big one day — too big to lift, too big to move, too big to take along on a family outing.
So they decided to keep her small.
In an unusual case that is stirring ethical debate in the medical community and elsewhere, doctors at Children’s Hospital & Regional Medical Center in Seattle and the parents involved are describing how Ashley has received treatment over the past few years designed to radically stunt her growth.
The treatment, known as “growth attenuation,” is expected to keep Ashley’s height at about 4-foot-5 and her weight at about 75 pounds for the rest of her life. Had she not been given the treatment, doctors estimate, she would attain roughly average height and weight for a woman: 5-foot-6 and about 125 pounds.
I think that their is a natural revulsion to such extreme treatments, and certainly this is extreme, but so is the condition that Ashley suffers from. Every indication I can find is that her parents love her and have seriously considered this issue and made what they sincerely feel is the best decision for her.
That is not to say they might not be wrong in choosing this course, that is certainly conceivable, but I don’t think it is an easy question and I highly doubt most of those who are quick to condemn have given it nearly as much thought as the parents did. I am not willing to judge.



My only question I would have is what happens if these treatments affect her other bodily functions (breathing, heart rate, circulatory system), which I assume are functioning properly. The story doesn’t indicate she needs a medical device to assist her in breathing, for example.
But, yes, it really isn’t that easy to come right out and say the treatments shouldn’t be administered for any reason.