Justus For All

None Sine Causa

Child for life

12:12 pm on Thursday, January 4, 2007

The Seattle Times

Ashley is a 9-year-old girl who has static encephalopathy, a severe brain impairment. She cannot walk or talk. She cannot keep her head up, roll over, or sit up by herself. She is fed with a tube. Her parents call her “Pillow Angel,” since she stays where they place her, usually on a pillow.Her parents say they feared their angel would become too big one day — too big to lift, too big to move, too big to take along on a family outing.

So they decided to keep her small.

In an unusual case that is stirring ethical debate in the medical community and elsewhere, doctors at Children’s Hospital & Regional Medical Center in Seattle and the parents involved are describing how Ashley has received treatment over the past few years designed to radically stunt her growth.

The treatment, known as “growth attenuation,” is expected to keep Ashley’s height at about 4-foot-5 and her weight at about 75 pounds for the rest of her life. Had she not been given the treatment, doctors estimate, she would attain roughly average height and weight for a woman: 5-foot-6 and about 125 pounds.

I think that their is a natural revulsion to such extreme treatments, and certainly this is extreme, but so is the condition that Ashley suffers from.  Every indication I can find is that her parents love her and have seriously considered this issue and made what they sincerely feel is the best decision for her.

That is not to say they might not be wrong in choosing this course, that is certainly conceivable, but I don’t think it is an easy question and I highly doubt most of those who are quick to condemn have given it nearly as much thought as the parents did.  I am not willing to judge.

6 Comments »

Comment by Bob Morris

January 4, 2007 @ 4:15 pm

My only question I would have is what happens if these treatments affect her other bodily functions (breathing, heart rate, circulatory system), which I assume are functioning properly. The story doesn’t indicate she needs a medical device to assist her in breathing, for example.

But, yes, it really isn’t that easy to come right out and say the treatments shouldn’t be administered for any reason.

Comment by cube

January 5, 2007 @ 4:00 pm

At frist i thought this case was cut and dry, who would want to make a kid small on purpose? But after reading serveral things, it began to make sense.

To the naysayers, you are not the one who will have to life the poor girl every day of your life multiple times, though health, sickness, injury, old age.

Imagine lifing 145 pounds or more when you are 65. I doubt it is easy.

Comment by Bird Dog

January 7, 2007 @ 3:25 pm

I’m with you.

Our science and technology have outgrown our moral capacities. And, not only that - our moral capacites do not appear to be growing at all.

Comment by probligo

January 8, 2007 @ 2:02 pm

Dave, we have been here before. BD’s comment on “moral capacity” is open to quibble, but is a very good part of a wider truth.

What happens if we start adding in a little “humanity” to the equation. I mean “humanity” in terms of “doing the right thing for another person”.

Fifty years ago, this child would probably not have survived.

The question now is -

Should we use palliative care to keep this child alive? How “right” is it to keep a person alive under these circumstances? What “quality of life” is that person likely to have?

OR

Should we use palliative care to ease this child’s path toward death? How “right” is it to allow a person to die under these circumstances? What quality of life might that person otherwise have had?

For myself, If I needed palliative care to keep me alive in circumstances where I am unaware of being alive; if I would die without direct intervention; then it would be far better to allow me to die. The very great difficulty (the moral judgement) is judging the level of the patient’s awareness.

Comment by probligo

January 8, 2007 @ 2:10 pm

Just to quickly add -

I believe that in many of the instances we hear of these days - remember (the brain dead lady) kept alive at the wishes of one part of her family? - there is a very strong element of selfishness in wanting to keep alive a person who to all other intents and purposes is dead.

It springs, I suspect, from an inability to cope with death; an inability to effectively grieve the loss of a loved one; and a denial of death as a part - a natural part - of the process of living.

Comment by Dave Justus

January 9, 2007 @ 8:28 am

I don’t believe that science and technology have outgrown our ability to be moral. Certainly they present new choices, and sometimes those choices are difficult, but not advancing our knowledge and abilities is a moral choice as well, and would result in us not being able prevent death and suffering.

Clearly, the child in this instance is not like Terrir Shiavo. Her brain is alive, and functioning. While it is not at anywhere like a normal child her age, and not going to become ‘more,’ she isn’t in danger of becoming less either. Certainly I think any action to ‘ease’ her death (i.e. kill her) would be absolutely horrible.

I also don’t hold with the idea that we should do what is ‘natural.’ Natural is certainly not a synonym for moral or beneficial. Fighting against nature is what we do as a species, and with good effect. Smallpox is ‘natural’ the smallpox vacine is not, and I know for sure which I prefer.

RSS feed for comments on this post. TrackBack URI

Leave a comment

XHTML: You can use these tags: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>

 
  • Buy Viagra
  • Buy Cialis
  • Buy Tramadol
  • Buy Accutane
  • Buy Propecia
  • Order Propecia
  • Buy Viagra Online
  • Buy Soma
  • Buy Tramadol
  • Buy Cialis
  • Buy Cialis
  • Buy Viagra
  • Order Viagra
  • Order Cialis
  • Buy Ultram
  • Buy Viagra
  • Buy Cialis
  • Buy Tramadol
  • Buy Viagra
  • Buy Cialis
  • Buy Tramadol
  • Buy Accutane
  • Buy Viagra
  • Buy Cialis
  • Buy Levitra
  • Buy Tramadol
  • Buy Soma
  • Buy Propecia
  • Buy Ultram
  • Buy Accutane
  • Buy VPXL
  • Buy Xenical
  • no rx pharmacy
  • western health levitra coverage
  • cheap viagra nz
  • line propecia
  • levitra viagra v cialis
  • neck muscle pain
  • abdominal muscle pain
  • soma without prescription
  • very cheap tramadol
  • cialis causes high blood pressure
  • viagra pphn
  • gout propecia
  • buy cialis
  • buy now online propecia
  • viagra and cocaine
  • muscle relaxation
  • internet pharmaceutical propecia
  • effect of propecia
  • no prescription cialis
  • retin-a micro
  • finasteride propecia proscar
  • ed drugs
  • back pain muscle spasms
  • buy cialis buy cialis online dreampharmaceuticals
  • cialis info
  • acne treatments oprah
  • premarin vaginal cream
  • viagra discussion
  • levitra side effects
  • viagra news
  • viagra sex domination
  • buy cialis buy cialis online dreampharmaceuticals
  • retail pharmacy
  • cialis soft
  • target pharmacy coupon
  • pharmacie online
  • tratamiento acne foruncular
  • levitra bloodpressure
  • order viagra online no rx prescription
  • success rate of propecia for women
  • levitra levitria
  • levitra for females
  • acne myths natural treatment
  • medical research for levitra
  • when was levitra first marketed
  • make your own viagra
  • next day cialis
  • baldness propecia propecia pills free shipping
  • hydrogen peroxide acne
  • levitra clinical data
  • taking both dutasteride and propecia
  • formula for viagra
  • quit smoking what works
  • viagra suppliers
  • gyno and propecia
  • order propecia online
  • acne reviews
  • bone breath manner cialis
  • levitra vs viagra
  • usa pharmacy
  • viagra without a prescription
  • cialis erection problems
  • prices soft tab cialis
  • get viagra now no doctor visit
  • viagra soft tabs
  • viagra next day shipment
  • levitra longevity
  • cialis drug interaction
  • levitra discount
  • fast propecia
  • personal propecia side effects
  • erectile dysfuntion
  • vitamins for acne
  • history of propecia
  • cheap cialis find
  • soma addiction
  • cialis for research
  • ncer liver xeloda
  • dreampharmaceuticals buy propecia online
  • buy cialis
  • 10mg levitra
  • levitra story
  • breast cancer
  • lapatin and xeloda
  • murad acne treatment
  • retin a buy 0.1
  • latest treatment for osteoporosis
  • cialis viagra sampler
  • phentermine online overnight delivery levitra
  • joint pain relief
  • xeloda and avastin
  • natural source of sildenafil citrate
  • levitra versus cialis
  • help quit smoking
  • pharmacy refrigerators
  • webresults propecia
  • muscle pain from stress
  • cialis for men
  • longer sex with viagra
  • cheap tadalafil
  • clomid ovulation day
  • latest treatment for osteoporosis
  • sublingual levitra
  • levitra meeting agendas
  • zyban and pregnancy
  • buy levitra day trippers
  • effects of soma
  • cheapest propecia sale uk
  • penis enlargement pills
  • penis vacuum pump
  • muscle male building
  • differin cream reviews
  • rxonline
  • cialis soft
  • bupropion medical function
  • hair loss medicine
  • viagra online shop in uk
  • levitra vs flomax
  • discount generic viagra
  • xeloda drug
  • pain relieving cream
  • cialis the sex pill
  • acne reviews
  • clomid online
  • viagra free trials
  • levitra tablets
  • retin-a from mexican pharmacy
  • order propecia through bosley
  • blind date propecia crack rich
  • viagra interaction
  • dangers levitra and cirrhosis
  • bbs bbs levitras
  • best herbal viagra
  • buy soma online
  • women and cialis
  • cialis sales
  • apotheke levitra
  • fda approved diet drug
  • penis enlargement
  • levitra drinking
  • generic cialis cheapest lowest price
  • tramadol 50mg
  • her2 positive xeloda and herceptin
  • cialis not effective
  • cheap cialis online
  • online pain prescription
  • acne care treatment
  • natural alternative to viagra
  • viagra st
  • safe viagra alternatives
  • fosamax d
  • no smoking hotels
  • wallgreens pharmacy
  • advanced pain management
  • caverta levitra cialis veega lozenges propecia
  • buy cialis without a perscription
  • acne treatment reviews
  • fosamax generic
  • cialis opposite effec
  • chronic renal failure and flomax
  • tadalafil
  • metastatic colon cancer xeloda
  • discount pharmacy propecia purchase
  • viagra sale
  • generic soma
  • cialis dangers
  • cialis dose
  • natural acne treatment
  • zinc for muscle growth
  • cialis medication
  • bulgarian cialis
  • levitra pens
  • clear up acne
  • discount levitra
  • erectile dyfunction
  • accutane safety
  • canada propecia
  • cialis drug intereactions
  • buy cheap tramadol online
  • levitra discounted
  • viagra canada satisfaction guarantee
  • levitra diabetic patients
  • eye problems cialis
  • cheapest price for viagra and cialis
  • side effects viagra
  • order tramadol
  • buy online propecia
  • bupropion sr
  • how to get rid of acne
  • muscle pain reliever
  • otc viagra
  • viagra cialis store
  • quit smoking reviews
  • danger propecia
  • side effects propecia
  • buy levitra online pharmacy online
  • cialis at discount prices
  • levitra and blindness
  • veterinary pharmacy
  • xeloda avastin oxaliplatin
  • buy viagra uk